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Before
the onset of schizophrenia I had already suffered
and struggled with the damaging effects of physical,
mental, emotional and sexual abuse by the hands of
my own mother. She was a victim of the same abuses
and because of her inability to confront her own
horrific childhood I became as her, broken. I was
forced into a world of violence, enmeshed into her
tragic world and a sense of separateness did not
take place. There was no possibility of developing
an identity of my own. A healthy bond between parent
and child never did develop because of my mother’s
emotional instability and immaturity and
unavailability. She suffered from her own psychosis
and was prone to fits of rage, which left me
confused, terrified and alone. The process of
detaching from the real world begun at an early age
as a coping mechanism but it was not until the age
of nine that schizophrenia was truly born.
It was not the actual abuse that caused me to retreat into the
world of schizophrenia but these factors played an
important role in pushing me over the edge.
Schizophrenia came about suddenly after being
confronted with the disturbing realization that I
was used, deceived and manipulated into performing a
lewd sexual act with a cunning psychopath, and then
discarded like yesterday’s trash. I was a mere
object of someone else’s perversions; it was a man
my mother was seeing. He weaved his way into my life
by using my mother and when these two joined forces
there wasn’t a hope in hell for me. Though not an
expert on psychopathology I have read enough
material on psychopaths to recognise the
characteristics and traits to come to the conclusion
that they both were. The act it self was
premeditated, and carefully orchestrated against my
will. That one incident changed my whole thought
process. It had scared the hell out of me. Before
that incident I was led to believe that that man was
there to protect me from my mother. That night so
many years ago, at the age of nine that man raped me
and my mother participated. The realization that he
was not there to protect me from my mother and
coupled with the fact that my mother was a willing
partner in the crime caused my schizophrenia. The
terror I felt at that moment and realizing their
true intentions was truly paralyzing. I was consumed
by evil with no way out. The terror I felt never
left me and I became obsessed with the belief that
the world was evil and so were people with cruel
intentions to do me harm. Within twenty-four
hours of that incident schizophrenia automatically
boxed all memories of any abuse endured before or
after the break in reality within my subconscious.
The world I lived in was now filled with
hallucinations, voices and depression. The symptoms
of schizophrenia masked the truth that I could not
confront. After all, wasn’t the world of
schizophrenia a much better place to live in? As
terrifying as it was it provided me a safe haven
away from the abuse and that disturbing realization.
The hallucinations masked the things I refused
to see. I did not see my perpetrators but strange
looking people dressed up in funny costumes and
they’d appear everywhere. In their hands they
carried knives to harm me, which represented how
threatened I felt. Of course they were just a
figment of my imagination, but all so real to me.
There was no discerning between reality and fiction
in the world of schizophrenia. Within each
hallucination there were clues to my perpetrators
identities, yet my mind protected me from that
truth. Anyone who dared to get close, including
teachers and other children their faces would
mysteriously change into wolves, which triggered off
an automatic need to run and hide. During the whole
process of schizophrenia I spent my time running and
hiding truly terrified of people. I desperately
sought to not exist, and deny the things I refused
to see. Schizophrenia provided the perfect escape.
The voices masked the things I refused to hear.
I did not hear my perpetrators voices as they
manipulated and forced me into their perverted
world. The nagging voices taunted me, played
with my mind just as they did. They were a
constant reminder of how worthless I was. Within
each voice there were clues to my perpetrators
threats and bribes. My mind protected me from ever
hearing them again.
The depression masked the deep sadness and
hopelessness I could not feel. Like a veil
of denial schizophrenia masked my whole existence to
allow me to survive. Each symptom masked the truth
and hid my feelings; the ones I refused to feel.
Schizophrenia sole purpose was to protect me from
the truth in order to survive what most people
can’t. The onset of schizophrenia was swift
much like when you watch a leaf fall from a tree. It
still amazes me to this day how fast the
transformation from broken child to schizophrenic
child took place. From that day forward, I
bounced back and forth from a world of terror and
fantasy. I was reduced to an animal state of
existence and that was when I embarked on a long
agonizing journey to find my missing self. And what
a journey it would become! In my mind I
could become anyone or anything I chose to be. One
day I would be the chosen one, the next day I would
be a magician with the ability to control things,
anything to avoid confronting the fact that I was a
worthless human being that loathed my existence.
After all I had been reduced to nothing…my need to
disappear from the ever-present terror I experienced
on a daily basis persisted to haunt me. Anything in
the real world was evil, anything outside my world
could not be trusted and I protected my new world
with a vengeance-- No one was getting close enough
to penetrate my world, the real one that held the
cause of my breakdown. Though I
had completely shut out the real world there was
still the core of my being that was intact and
healthy. That part of me struggled to find a way
out. I was determined to survive. I never completely
gave into schizophrenia. It never owned me. Without
my knowledge I was seeking a place of safety and an
opportunity to leave my schizophrenic world. A
long sought out opportunity didn’t present its self
until several years later. After the birth
of my son, his presence jarred me awake from a 21
year-old dead sleep. Combine that with witnessing a
child being molested and that was enough to awaken
me. What drove me into my schizophrenia world was
now going to drive me out of it. I would come out of
it the same way I went into it by a disturbing
realization. That is the- key- to recovery.
Recovery began to emerge; vivid memories of abuse
began to stir and surface. At first, just flashes,
snapshots and insights that brought on the same
terror I had felt during the onset of schizophrenia
so many years ago. In the beginning I wasn’t sure
what I was experiencing but somehow I found the
inner strength and courage to explore and analyze
what was occurring. I dug deep within myself and
just let go of the outcome. At the same time I was
so terrified of what I would find. I actually
thought I was losing my mind but what I was
experiencing was a breakthrough. Little did I know I
would find myself? There I was to embark on a
journey out of schizophrenia by the same disturbing
realization that brought me into it. I was blown
away by the fact that schizophrenia was such a
remarkable illness and I was going through a huge
personal transformation. The first
month of recovery was so painful. My body actually
shook. I felt the strain. Confronting what I had
buried within my subconscious for all those years
were both exhilarating and terrifying. As I
confronted that disturbing realization the symptoms
of schizophrenia disappeared and lost its power over
me.
To discover that I was alive brought about a great
sadness. For all those years I had been reduced to a
shell of an existence. I had been dehumanized in
every sense of the word. The grieving
process had begun. Not only did I have to grieve the
loss of my childhood but also all the contributing
factors that forced me into schizophrenia. It was
hard work. At times I just wanted to die because the
pain was so great. At times I wanted to retreat back
into that terrifying world, yet safe one. At times I
became so enraged because I had been cheated out of
my life but that same rage fuelled me to carry on.
I bounced back and forth from rage, sadness,
and fear. I can honestly say that I was guided by
intuition and not the know how in what I was doing.
I had no reference books, no guidelines to what was
to come next. I actually moved through recovery
blindly but always with the hope of reaching my
goals—freeing my mind, spirit and body from the hell
of schizophrenia and helping that child whom was
being molested and of course saving my son from a
life I had known. With all my might I
struggled to capture a glimpse into which I was. I
was so damn curious, just as I was when I was
seeking my missing self through mystical stories,
astrology and religion. So far all I found was dead
ends but now I was equipped to dwell a little deeper
into my psyche. Things were becoming clearer. I
broke through the denial. Memories and
feelings surfaced so fast. Connecting the two was
difficult. It was like I had to connect the
unhealthy part of me with the healthy part. It was
like I was divided and the two halves had to merge
as one to find a balance and wholeness. That was the
tricky part to recognize what feelings belonged to
which memory and then find comfort exploring all
those new and fresh feelings. I tried to pace myself
during recovery but after years and years of
suppressing feelings they just gushed out like a
tidal wave. It was a terrible time for me.
After a while though, I began to recognize a pattern
in recovery—memory, feeling, memory, feeling and so
forth. Though, the pain was great I began to gain
confidence in myself that I could do it and I
actually got very creative in my recovery. I began
to set goals in just how much I would confront in
one day. I started researching the affects of sexual
abuse and trauma picking up little nuggets of info
to further my recovery. My reading level was only at
grade 3 so reading those books was hard on me. In
the process I taught myself how to read and write.
I could not find a book on recovery from schizophrenia and
books about psychology were too clinical to grasp
their meanings. I didn’t understand them at all. But
then again the idea crossed my mind to not try to
read them, due to the fact that they, possibly,
would have led me in the wrong direction. I wanted
to really heal and recover by my own experience. I
wanted to do it alone. The most important part of
recovery was done: dealing with the disturbing
realization the second time around. Though
recovery dragged on for a good three years during
that time I made could strides towards a healthier
life. In the process of recovery I left my
entire family. I was not that sick person I
used to be and I no longer fit into the family
system. For many years I was the centre of
attention; everyone was so fixated on my sickness, I
was no stranger to the blame game. I still recall
many visits to the doctor with my mother and her
complaining profusely that she was at her wits end
in what to do with me. I received many lectures from
others to stop driving my mother nuts. Isn’t that
ironic? Besides, if I had any way of
protesting my mother’s accusations who was to
believe me? She held a good job at the time, my
stepfather was educated, we lived in a nice house,
we went on family vacations together, and to
outsiders we were just a normal family. My parents
were so convincing in deceiving school officials and
the social workers that had any contact with us. In
many ways schizophrenia was the perfect alibi for my
parents; nothing remembered, no evidence.
Schizophrenia not only protected me but my family
too. I am not going to lie; recovery was
excruciating painful. The obstacles I have had to
overcome are nothing short of a miracle, yet not
one. I made the right choices at the right time.
With sheer determination I struggled blindly through
schizophrenia and recovery. I wasn’t willing to
conform to others ideologies and the stubborn belief
that I was a hopeless case. I never did give in.
I have been told that mental health
professionals are now focusing on recovery and
rehabilitation. I have read the new mandate for
treatment and in my eyes it is not good enough.
Medication seems to be the main focus and I never
used medications so that shows a huge error in
treatment. I have visited many low-incoming
housing buildings and people with schizophrenia seem
to be warehoused and forced to take medications for
the rest of their lives. In my eyes that is not good
enough. The only help they seem to be receiving is a
place to live, a monthly visit to the psychiatrist
and home support The mere suggestion that they are
acting out they are sent to the hospital and
over-medicated to reduce symptoms. What kind of
treatment is that? I believe that my own
efforts with recovery from schizophrenia should
influence a change, as so other survivor stories. I
believe that mental health professionals and
families alike should band together and create that
change. I believe a lot of things should be done but
I am only one voice. I am waiting for that change. I
am waiting for mental health professionals to admit
to their mistakes and change their attitudes. I hope
it comes soon because I have a need for change. I
need that change to put closure on my own experience
with schizophrenia. Until more of us get to tell our
stories I will never truly feel at peace. As a
survivor looking into the dismay of the mental
health system I often wonder who in the right mind
would deny people with schizophrenia the opportunity
to reach a partial or full recovery. As I
said before and will say again and again about Jack
Rosberg’s work, “Others should follow his lead and
learn by his example.” He is not only a man with
great insight into the world of schizophrenia but
one with determination and dedication in creating
change. He most definitely knows his stuff!
Thanks Jack for allowing me the opportunity to write
about my experiences with schizophrenia and
recovery. Tracey May
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