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An Article based partly on A Lecture on the
Psychosocial Treatment of Schizophrenia at the Second Regional Hospital of
Novosibirsk, Russia April 4, l994.
I'm happy to be here and that people here are interested in hearing about my
work. As I understand it, some of you are psychiatrists and some of you are
nurses. I want to talk about things that are important to you, which goes
further than individual psychotherapy, which is what I do in the treatment
of schizophrenia. I think it is important to understand that before the
introduction of the neuroleptic drugs in l954, psychotherapy was one of the
few treatment methods that was used in the treatment of schizophrenia in the
United States.
Just a brief history so that you can understand the direction the mental
health field is taking. Before l923, there wasn't any treatment for
schizophrenia besides the physical methods of treatment in the United
States. These included methods such as electro-shock treatment and
insulin-shock treatment. I know that they still are being used in Russia. I
personally see no value in any form of shock treatment, with patients who
have a diagnosis of schizophrenia. I consider these methods to be a barbaric
approach to human beings. They create confusion in individuals who are
already confused. They do not overcome the symptoms and characteristics of
schizophrenia, such as delusions, hallucinations and/or thought disorders,
they cause brain damage and they increase the fear and terror in the
schizophrenic patient.
In l923, the psychotherapy of schizophrenia was introduced in the United
States by a European Psychiatrist, by the name of Adolph Meyers and it
captured the attention of many professionals who treat people who have
schizophrenia. Psychiatrists became very interested in this method of
treatment and many professionals began using psychotherapy with this
treatment population. I remember a story that was told in the literature
about a president of the American Psychiatric Association, who became
excited by the fact that psychotherapy was a useful method of treatment with
schizophrenic patients. But one of his associates said to him "my friend,
that's very good, a psychotherapeutic hour with a patient who has
schizophrenia can be worthwhile, but what about the other 23 hours of the
day". What happens with patients after they have a therapeutic session? What
are their lives going to be like? That brought some more reality into the
psychiatrists' mind. It suggested the importance of seeing the patients
actively involved in other therapeutically related activities. However,
these ideas, that is, methods of resocialization and rehabilitation, as we
now know them now, were not developed for many decades. Though the
realization that the schizophrenic patient needed more than a therapeutic
hour, it took more than seventy years to develop and effect these
therapeutic modalities.
However, even without the allied treatment modalities, the psychotherapy of
schizophrenia developed very well within the United States and also in parts
of Europe, until the neuroleptic drugs were introduced in l954. The
medications are used in most parts of the world as a primary treatment
method. I've seen them in China, I see them in Europe, including Russia and
of course the United States. They became the treatment of choice. It was
promised, when they were introduced, that they would stop this illness
called schizophrenia by l970. However, the only thing that it stopped, was
the development of other treatment forms. I'm not against medication, you
need to know that, but we must be aware and face the reality of their
limitations. Medication is simply a treatment form, which makes people more
comfortable and reduces some of the symptoms. There has been a good deal of
research on medication versus psychotherapy that has pointed out that both
psychotherapy and medication are more effective when they work together.
The medications produced quick results symptomatically especially with
patients who were acutely disturbed. So because of this, psychotherapy and
psychotherapists began to retreat from the schizophrenic patient, even
though some psychotherapists continued using psychotherapy with these
patients. Since there were no other treatment methods developed yet and
psychotherapy by itself was not as dramatically effective, medication became
the major tool in the treatment of this condition called schizophrenia. But
medication, didn't overcome the problems and we found over a course of
years, with a great deal of research and outcome efforts, that
psychotherapy, the way it was practiced traditionally, wasn't good enough
either. So many people were confused about what to do with this difficult
problem. However, in recent years, it has become clear that we can't really
underestimate anything that seems to suit the treatment of this very
difficult condition. Psychotherapy is important, medication is important,
both of them are better together, but that is not good enough. Psychotherapy
was a very passive treatment approach in the past. Over the years, outcome
and research studies have concluded in many parts of the world, that one of
the factors in the failure of psychotherapy with the schizophrenic patient
was the passive treatment approach commonly used with these patients. Those
studies have determined that we have to be more actively involved with these
patients. We cannot wait for their invitation to join them in their world.
We must make an active verbal effort to establish a relationship with them
that gives them a sense of hope. Perhaps we don't have to explore the past
so thoroughly, perhaps the best history that exists, is between the patient
and the therapist. We see other methods of treatment developing in many
countries. People all over the Western World and even in China for an
example, are beginning to realize the importance of other treatment methods.
These methods are not in competition with each other.
In order for treatment to reach its maximum effectiveness, we need to have a
series of treatment modalities that act in a compatible manner with each
other. The psychotherapy of the past is no longer the psychotherapy of the
present. It has changed, it's more active, it's more involved, it's more
humane, it's more personal, it's not so secretive, it isn't necessarily
based on psycho-dynamic or psychoanalytic principles. The use of medication
in the past is not the use of medication in the present. What I'm saying is
not a subjective opinion but is a function of research results. However, we
have a schism in the treatment world, which is really tragic. Patients find
it hard to change and so do people who treat them. Without changing our
treatment approach, patients do not change. I think all of us know that up
until the present time, the treatment results with schizophrenic patients
have not been good enough.
I'll give you an example of people who are very rigid in their attitudes
about treatment. At another hospital in Novosibirsk, I did several days of
lecturing and demonstrating with patients and I was told that one
psychiatrist there was angry at another psychiatrist, because he came to my
lecture. His idea was that psychotherapy is absolutely useless with these
people who have been diagnosed as schizophrenic. Well that's his opinion,
but it's more than an opinion. It shows a mind that's very rigid. It's
apparent that the man doesn't have any understanding of what is
schizophrenia. But it's even worse than that, a man with such a terribly
closed mind, to new thoughts and new ideas does not have the best interest
of his patients in mind, when he closes his eyes to other important
treatment efforts. His patients will be sick for a very long time and I will
tell you even more without knowing his practice, that he probably uses more
medication than patients need. That his patients live in what we call
"chemical straight jackets", they are dehumanized. Research points out that
if you reduce medication carefully by 40%, therapy is much more effective,
providing you have a good treatment relationship.
What is psychotherapy today? This is something that I hope I'll be able to
show you in some of the demonstrations that I do with patients here. The
psychotherapy that you see me do will not be the psychotherapy that you see
other people do. It's based on a very important principle, that is anything
that is sensible and useful should be used to help these very sick human
beings. I believe you should use any means at your disposal to effect
changes in those individuals with schizophrenia, excluding the old physical
methods of treatment mentioned, that is shock treatments. We know in recent
years, other methods have developed, like resocialization and
rehabilitation. We have a treatment package today. A treatment approach that
embraces every aspect of that human beings' life. We know that medication
has a purpose and a point to it, but it doesn't cure anybody, as a matter of
fact, there is no medical cure for schizophrenia, which doesn't mean that
people with schizophrenia can't change. There are many qualified research
studies in Europe and also in the United States, which point out very
accurately, that patients who have a history of ten or more years of
schizophrenia, can make social changes. These studies are not suppositions,
they are definitely accurate and valid studies that have been replicated in
many different countries. This is a time of change, whether you like it or
not. These human beings deserve the best we can give them. We certainly can
do better than we've done, there is no question about that, if we have the
right attitude.
We know that psychotherapy is different today. What is it? What are people
looking for? Are we talking to patients with a hope that as they understand
themselves better, they will change their behavior? That was a method that
was practiced for many decades. But patients with a long history of that
condition do not respond to that form of treatment. You see this in your own
practices, I'm sure. If somebody is hearing voices, will they stop hearing
voices because you talk to them? If somebody doesn't know how to take care
of their hygiene and clean themselves, and take showers and baths, or eat
properly, will they change, if you tell them these things? Psychotherapy has
to produce change in that person, without which there is no treatment. Many
of the patients that you treat here need patient management, because they
change their behavior as a result of what you do with them and what you
expect of them. Then perhaps they begin to understand themselves a little
better. So instead of insight, we're looking for behavioral change and that
really is the purpose of any form of treatment. Also we are looking at
another aspect of treatment which is very important, and that's
rehabilitation. I think that's where some of you come into the picture, in
the area of rehabilitation and resocialization. We found without any
question, that some kind of work, some kind of effort is critically
important in helping these people gain a sense of self respect.
It's not good enough to allow patients to lie in their beds all day long and
to look at television and to drink coffee and to smoke. They have to be
exposed to things that will help them regain their will to live. They have
given up hope, because they have failed so much. Also, we have given up hope
because we find it so difficult to really stimulate them and get them
involved in activities that are useful and critically important for their
development. If we have no hope, they have no hope. If we don't change, they
won't change. Atmosphere is a very important issue, it's more than
technique, it's more than methods, it's the attitude of the individual
person and the attitude of the entire hospital of people working with these
patients. If you don't have the optimism, if you don't feel the warmth
towards these human beings, what you expect of them will not be fulfilled.
At the present time, these four methods of treatment that I discussed with
you, really work together, not separately, they are not separate categories
of treatment. It's very important for all these treatment methods to work
with a sense of harmony. Let me be precise, it's time to bring ourselves
down to earth. Psychiatrists are one part of the effort. Psychotherapists
are another part of the effort. Resocialization specialists are another part
of the effort and the rehabilitation people are also another important part
of the effort. To me, it doesn't make any difference whether you are a
psychiatrist, a psychotherapist or a specialist in resocialization and
rehabilitation, a nurse or one of the orderlies, you are all equally
important. People have to come to respect each other more as equal
participants in this creative and important environment in reference to
these patients. It used to be, in my country at least, that psychiatrists
were the captains of the ship. They were respected too much. The nurses and
the other people in the treatment team were not respected enough. The world
has changed, in my elp these human beings.
Let me tell you something, the train is moving and either you get on, or you
get off. If it doesn't happen now, it will happen next year, if not next
year, the following year. It's inevitable, because our great population of
people who are very sick, are demanding we change our efforts so that they
can change their way of life.
Many years ago, I developed a method of psychotherapy which is very
untraditional. I continue to practice it, yet making changes when indicated
because no treatment method can continue being effective without changing
with the changing times. I think it's an advanced opinion. Everybody has
limitations, each independent effort by itself is not strong enough, it's
only when people mature enough to realize that they need to collaborate with
each other, in a harmonious way, can this therapeutic force come together in
a strong and powerful way to method of psychotherapeutic treatment. However,
no matter how good you are or how great you are, by yourself you're not good
enough, you need each other. If you don't realize that, your professional
life treating schizophrenia will be unsuccessful and you will have deprived
your patients as well as yourself of the rewards of effective psychotherapy.
For years, I worked in one hospital after another, as a psychotherapist and
I really was never satisfied with the atmosphere of the hospital, because it
was so traditional. It really, by it's resistance to new ideas, inhibited
the creativity of people who developed innovative psychotherapeutic
directions. So in a evolutionary sense, my efforts were directed towards
alternative methods of treating this population. I have been treating
schizophrenia for forty years. Some learning is a very hard and painful
process for all human beings. What makes life interesting, is if we allow
ourselves the freedom to learn and to recognize our inadequacies.
I will tell you something, most psychotherapists and psychiatrists just
don't understand the meaning of schizophrenia. Nobody knows what causes it,
everybody's looking for a magical answer to it. There is a lot of money
directed toward research, which is important, but not enough money directed
towards treatment and rehabilitation centers. Schizophrenia could be a
result of a hundred different causes. Whatever the cause is, whether it's
biological or psychological, we waste too much time thinking about these
issues. Patients can and do change. That we have to concentrate on, helping
them change. That's the greatest challenge that psychiatry has today.
Many of our mental health professionals assume a great deal about
themselves. Do we know that much about life, that we can put a fence around
the human potential? Does anybody have the right to call another human
hopeless? What makes a person do that? You hang a label around a person's
neck and it follows them for the rest of their life. So many people are
really influenced tremendously by this negative attitude, that they give up
on life. Are we so great that we can make this pronouncement? Some people
think they know that much.
We have a clinic in Los Angeles, which is named after a patient Anne Sippi,
who was considered to be hopeless because of her serious mental illness. At
the age of two, she acted very strangely and her mother took her to a
doctor, who said that things would change in time. At the age of four, she
was very sick. It seemed, in retrospect, to be a combination of autism and
also childhood schizophrenia. Her first therapist told her mother, that it
was too late, she was hopeless. Her mother refused to accept that cynical
announcement and refused to abandon her to public mental health systems. She
refused to give up hope that she, one day, could have a better and more
normal quality of life.
I was working at a hospital in California and a psychiatrist asked me to
have a consultation with Anne Sippi. She was then 23 years old. Nineteen
years of her life had been wasted in schizophrenia. Her mother refused to
accept the prognosis made by her first psychotherapist. For nineteen or
twenty years, she went from one place to the other, from one doctor to
another, because she refused to give her child up to mental illness.
This woman, Anne Sippi, was a very difficult and sick person. She was
violent 70% of the time. She spoke three words. She hurt people by tearing
their hair out, biting them and kicking them. I approached her in the
hospital and I'll tell you what I did with her, so you will understand that
I am not a traditional therapist. She was standing outside of her restraints
that day, looking up at the sky on the open patio in the closed unit and
laughing. I approached her and pulled her head down, and I said "young lady,
I understand that you bite people, you hit people, you kick people and you
tear their hair out, that's fine with me because that's exactly what I do."
She noticed me then, she knew I was there. She was not responding to the
voices at that point. She realized that I had challenged her, that I dared
her to continue doing those destructive acts. Then came the tremendous
battle between her and myself. I was determined not to let her persuade me
to leave her alone. I chased her all over the hospital screaming at her. I
shouted at her "stop being crazy" now that's not really what is typically
done. What happened after three weeks is that, she began to control her
impulses more effectively. I was determined that she would not go to a
mental hospital for lifetime custodial care. I had effected a therapeutic
attachment and I was determined to force her to change.
I met with her mother and we decided we couldn't work in hospitals any
longer, because it just didn't have the right atmosphere for us. So we
started an organization and we thought it would be right to name it after
her daughter. We raised enough money to buy a residential treatment center,
so that we could work freely and creatively. The Anne Sippi Clinic has been
in existence since l978. As a matter of fact, as a facility for treatment,
it has become an example internationally.
We have 32 beds. We have staff psychotherapists, a psychiatrist and case
managers. The case managers are entrusted with the resocialization and
rehabilitation procedures under the supervision of each patients'
psychotherapist. When people ask me for work, there are certain qualities
that I look for in that person. Whether they're experienced or not
experienced is not really the basic issue. It's whether they can cope with
pressure. Whether they have some sensitivity. A very important ingredient
that most people never talk about, is do they have any common sense. I would
prefer that people use good judgment and common sense, instead of trying to
be very fancy creators and contributors. I'm interested in people wanting to
learn and wanting to work hard. I'm looking for people who have respect for
patients who have schizophrenia. I'm looking for people who have some hope
and for people who don't think that these people who have schizophrenia are
so very strange. Because they're not so much different than we are. They are
born the same way we are, they have similar needs for love and sex and they
want things the way we have them. Like all people, they die the way we do.
So I'm looking for people who really understand that there is some craziness
in everybody's life.
I'll tell you what the principles of treatment are, and I hope that you, as
a treatment person, can find them useful. I want to preface my remarks with
the hope that you can in a insightful and reflective way, take a good look
at yourself, I think we all need to do this. We need to be critical of
ourselves, of each other, but not in a destructive way. But in a way which
will help us understand our faults, so that we can change in a positive
manner.
All of you are staring at me and wondering about my diagnosis. You know I
could be schizophrenic, for all you know. But just like you, I don't show it
in public all the time. But when I go home and I close the door, then it
becomes a different story. I can be depressed, I can be maniacal, I can be
very paranoid, I can be grandiose, I can have tremendous feelings of
inferiority and inadequacy, doesn't it fit you too? Isn't that the way of
all people? Take a look outside of this hospital here in the cities, in the
streets. Who is more dangerous, your patients in the hospital, who have a
diagnosis, or the people out there? Because they have a diagnosis, does that
make them sorry and unfit human beings? The world sees them that way, for
some reason, perhaps because all of us have a primitive part to ourselves
and contact with them stimulates it and exposes it. They defend themselves
and keep us at arms length because they are afraid of change. We, by our
attitudes, keep them at arms length, because we see ourselves as being like
them. It's like looking in the mirror and seeing just a little bit of
yourself. It's really sad and tragic when this condition prohibits people
from living life with some quality attached to it.
So at our clinic, the Anne Sippi Clinic in Los Angeles, if people are not
optimistic, if people are not hopeful, if people are not willing to work and
change and learn, then they don't belong there.
Patients become feeble or enfeebled or weaker, because of our lack of
expectations. Not everybody is completely sick you see, not everybody is
completely well. When you can look at the healthy parts of these human
beings, and see that they can be creative and effective in doing things,
then perhaps your attitude will change. If you see that they need to form a
relationship with you that is significant and meaningful, then their chances
of recovery are better. Words are not enough without the feelings attached
to it. It has to be an emotional relationship between you and that person.
How can that person change if he feels that there is nobody in his life? How
can he get rid of the terror, the fear, the tremendous fear, if he doesn't
feel like somebody is trying to really help him? If he doesn't grow to trust
someone so that he can feel secure and safer in a world which he sees as
dangerous to himself, how can he achieve any degree of social recovery.
The end result of schizophrenia is a process which is designed to keep the
person alive. It is a survival system. The initial fear, creates the
symptoms. The symptoms reduce the fear. Without symptoms, they couldn't
live. So the symptoms have some sense, there is a logic to it. If you listen
to them well enough you will find out that they have developed a language, a
different language for each person. So what do you do? You have to learn the
language. You have to decode some of their metaphors. You have to understand
the logic and the language that they speak. The purpose is to stay alive in
a world that they see as dangerous to them. That's all it is. We have to
find a way into their lives to start with, so that they can come to believe,
once again, that there is some sense of hope for them.
So at the Anne Sippi Clinic, what the psychotherapists do is work with
people in a different way. That's in terms of helping the case managers
effect rehabilitation and resocialization of the patients for whom they are
responsible. Perceptions of these people can be very distorted. We've always
underestimated their capacity to do things. They are resistant to our
efforts at involving them in productive activities. But with patience and
kindness and firmness, you can change their direction.
Many of our patients are now doing things they haven't done for many years.
Because of their illness they have been deprived of education. We have a
tutoring system, a teaching system. It's just wonderful to see a person, who
is actively hallucinating use a computer. But I think it's simple to
understand, that you can't hear voices and use the computer accurately at
the same time. But they like using their minds, they learn things they never
knew before. They learn how to spell, they learn mathematics and they show a
greater interest in reading. We have a women's group, which is designed to
help women understand how to take care of their personal hygiene. We teach
men how to shave themselves. They have lost certain social skills, we need
to teach them those skills again. What good does it do to sit down and and
talk about whether or not they had problems with their mother, if they don't
take showers or baths. If they don't know how to use the bathroom, or how to
eat properly and most important or equally important, how to talk to each
other. They need to know how they effect other people in the world around
them.
As an example. A 57 year old man at the clinic came to me. I was the first
therapist he had at the clinic, he sat down, I sat down and he started to
cry. He got sick with schizophrenia at the age of l7. So he sat down and he
started crying and said, "my mother was so terrible to me, that's why I'm so
sick". This insight must have been acquired in some of his previous
therapies. But I asked him a shocking question, I said, "why don't you zip
up your pants when you go to the toilet". Which surprised him because
therapists don't generally say these things. So I began working with him on
these basic issues, creating trust, effecting collaboration, creating a
therapeutic alliance, so that we could work together on his sickness.
There are some people who like the easy road and instead of teaching him how
to shave, they shave him. I would never tolerate this, learning is slow but
it's meaningful. How can people feel good about themselves, if they feel
they are helpless? It's difficult, it's hard, but the end results make it
worth while. We have patients who work. We have large grounds and they have
planted vegetables and flowers. They go out to work reluctantly or with
great resistance to begin with, but once the work begins, they feel good. Of
course there is a time for play too.
We take our patients out into the world, we feel they belong there. They
shouldn't be hidden from the world, they are not a shame, it's not their
fault they're sick. We take them to museums, they may be a little peculiar,
but it doesn't make us embarrassed. We take them to musicals, we take them
to the movies, we take them to the park, to the beach and they paint and do
other creative things in the clinic. Each person who has this condition is
an individual, they are not all the same. So when we do our staffing on
these patients, we create an individual program for each patient, because
they all can't do the same thing and they all cannot tolerate the same
amount of pressure.
We have a system as far as our psychotherapists are concerned, which I think
is creative and really to me, a wonderful expression of a human being
meeting with another human being. Our therapists do something different than
most therapists do, they don't sit in their offices. Each therapist must
spend some time outside of their offices walking around the unit and talking
to each and every person. That's the world the patient lives in, you really
can't understand their behavior, if you simply sit in your office and tell
them to "come on in, let's sit down and talk ". But if you see them in their
world, see how they behave, their sense of belief in you grows and gradually
they begin to feel good enough as human beings.
Many people have seen us as an example of treatment that should be
replicated in different institutions. If you do psychotherapy alone or
medication alone, what you create is an addiction to those two treatment
methods. Change doesn't come about without those other things that I
discussed, such as resocialization and rehabilitation. Briefly it is my
understanding that this hospital is going in that direction, I hope so. It's
necessary to change.
In our brief conversation, the chief psychiatrist of this hospital told me
that rehabilitation was one of the major directions. I wish you success, I
think if you work together in harmony, you will have success. Then you will
feel the pleasure and the excitement of your efforts. You will be able to
know that what happened to that person is more than a function of simply
taking medication. The changes will be deeper and will be longer lasting. My
prediction is that with many of these patients, you won't assume that they
will regress and need re-hospitalizations. I know that's true, by the way,
I've had the good fortune and the privilege of seeing patients talking to
staff in fifteen countries in the world and I have seen this broader
treatment development taking place for the last number of years.
So that is briefly what happens in treatment today. You should understand
one idea, which to me is exciting, that this also, these treatment
modalities will be refined and they will also change in time.
Until we meet again,
Jack Rosberg
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